moving through

I think I am starting to accept a thing I can not change.... I can not change the fact that I have a photosensitve condition that makes it necessary to limit my exposure to the sun. I could dye my hair black and let my skin get so pale it is luminous. Well, the pale part will happen any way. The black hair is unlikely. But, i am moving into a place where it is okay to do what I need to do to take care of me no matter what it looks like to others. People DO consider it strange when one wears long sleeves in the summer. Oh well. It's either that or stay indoors and that is as unlikely as black hair. I have a nine months old puppy who needs LOTS of exercise. And so the long sleeves will stay and the puppy will get out. And I will get out. I too require time out of doors. And I will get used to hats. I will. But, I think I need a new hairstyle to accomodate the hats. This one isn't working too well. Must think on that.

pseudoporphyria

It sounds like a joke or something, but I assure you it is not. G'head. Google it. I was diagnosed a few years ago. One of 100 documented cases. That's me. it is a *bulbous photosensitivity* cahracterized by blisters on the hands (can be on the feet too). Caused by nsaid use and sun exposure. At the initial outbreak I was taking Aleve at the beach. I have not aken anything but tylenol since then, but I bought extended release tylenol which must have been a mistake. Plus, my zyrtec is suspected of being problematic but I have to take that. And it isn't an nsaid. Be that as it may, I got a blister while at the pool with the summer camp kids yesterday. Sunscreen is not enough apparently. Tomorrow I'll be stylin' in my long-sleeved t-shirt, hat, and sarong. I'll have the regulation swinsuit underneath (cause they won't let you in the pool without one) Whether I'll be able to get wet in my get up or not remains to be seen. There are always the showers. ause it's hot here in Pittsburgh. Well, we did have a cool front move through today, but with all those clothes on I don't think it will matter.
After looking at some pictures online of pseudoporphyria which looks worse than mine, I think I'll just go for the over dressed look tomorrow. And shade!